These posts are copied from our Guestbook on Caring Bridge. Please feel free to sign here if you are moved to do so. We love hearing from all those people who are helping to hold us up. Every loving thought, every prayer, every kind word makes a difference to us
- Written Oct 1, 2012 8:33am
Just wanted to send a little message. It’s been a long time since we have been in touch. We have so many fond memories of little Zahrah and little Caemon playing together. We think of you every day, send out positive thoughts (it is now part of our daily routines to think of the people we can send positive energy to), and hope to see the kids playing together again.
Thank you, Timaree, for taking the time to share this difficult journey with all of us. We are all holding your hands as you go through this.
with love and warmth
the Ghassemieh-Wood family
golbou ghassemieh
- Written Oct 1, 2012 7:43am
I am going to pray a verse for your sweet caemon And He makes everything beautiful in its time hang in there mama
sandi kellman
- Written Sep 30, 2012 5:41pm
After reading the journal about Uncle Seth’s and grandma’s visit, Cameon and his moms are surrounded by so much love. I am in awe and will be thinking of you often.
Sue Wiliams
- Written Sep 29, 2012 10:06pm
Holding you all in light and love. Love, Jeanne
Jeanne Kirke
- Written Sep 29, 2012 7:33pm
So so sorry words not adequate praying for you all
sandi kellman
- Written Sep 28, 2012 11:37am
Aww! Hey, jump in that hot car, crank up the tunes and cruise, Caemon! (Does he have a “radio”?)
What a time for you all. We cry, and laugh, for you. How is the donor quest going? We’ve tried to get some interest going amongst friends here. Might help. Much Love and Caring, Roger and LindaLinda Williamson
- Written Sep 28, 2012 10:39am
Sending you all love and light. I am in awe at the grace all of you are showing as you face this incredible challenge before you. Thank you for sharing your journey. I know angels are walking beside you. Love, Jeanne
Jeanne Kirke
- Written Sep 28, 2012 8:28am
Sending you lots of prayers and love on your healing journey. You are such a brave boy!
Jen, Tatiana, and Lukas
Jen West
- Written Sep 28, 2012 7:39am
Good morning girls and our beautiful boy 🙂
Caemon, we love seeing your mommy’s Pictures of your smiling face!! Uncle Dean wants to know if you can do him a favor and see if they have a car big enough for him so he can race around the nurses station with you when you get to have visitors.
We love you all so much and I know if there is anything we can do you will let us know. When we win that AWESOME basket that Carol is raffling off we will have to stay at your house for a week to claim all the goodies!! Don’t blame us, it will all be Carol’s fault!! Lol!!!
We love you all, big fat kisses and hugs:)
Dean and KimKim Sweeney
- Written Sep 28, 2012 6:34am
Praying praying for you all virtual hug and love
Isandi kellman
- Written Sep 28, 2012 2:48am
I’m so glad he is not restricted to his room anymore and so sorry he needs more aggressive treatment. Sending love and strength to all of you.
Jennifer L
- Written Sep 28, 2012 12:01am
Today Caemon showed me how much he loves having his uncle seth around. During the hospital bingo game he turned to me as I sat next to him and looked me straight in face with his piercing blue eyes and would not take his eyes off of me for the possibilty of winning the best of bingo prizes. He said “I want to sit in the chair”. I said ” well I am sitting here but can I hold you?” “YESSSSS” was his response. He allowed me to hold him and even let me show him all of the fun apps on my phone and at some point gave me a big boy “bonk” forehead to forehead. It was an awesome moment I had yet to be able to share with him. So stoked as an uncle. I cannot wait for the guys weekend camping trips Caemon zander and I get to share soon. Love you all so much
seth marston
- Written Sep 23, 2012 8:28pm
No greater joy to a gandma than to be told “I love you” from a little grandchild. I hope I can learn to never take those words for-granted… Sweet Caemon let me know in so many ways how he enjoyed my time with him this weekend: many precious moments from telling me he was so happy we were playing with playdough to throwing kisses to me to take to his friend Homer (our wall heater), but nothing to match the words “I love you, too, Grandma”,
Janet Streight
- Written Sep 20, 2012 10:22pm
You are strong, and amazing, and so is that beautiful boy. I love you mamas, and holding in my heart a vision of your family, whole and healthy! 🙂
Heather Bishop
- Written Sep 20, 2012 1:29pm
Wishing you and your family strength as you endure this challenging time. My thoughts and prayers are with you 3.
Shann Everts
Fellow Nor-Cal girl and have been stalking… I mean reading your blog for about a year.
Shanna Everts
- Written Sep 18, 2012 8:14am
Thank you for the updates and that he is feeling better praying for you all
sandi kellman
- Written Sep 18, 2012 8:06am
So wonderful to hear such good news! Thank you for posting such adorable pictures as well. Bodhi has been asking about Caemon a lot and he really enjoyed seeing the pics , especially the one of Caemon playing with his musical instruments. He said,” See, Caemon is feeling better!” We love you all so very much! Thinking sweet thoughts of light and love!
Crystal McDougall
- Written Sep 18, 2012 6:56am
We don’t know you, but we love you! Sending you strength from Santa Cruz!
Angela, Charlie, Jackson and AlainAngela Farley
- Written Sep 16, 2012 8:38pm
Our queermo-parented family and munchkin send our love to your family, across many miles. Found you through Roozle’s moms, and wishing you all the best. If your journeys ever bring you to Pittsburgh (big transplant center), we would be happy to host your family.
Zach S
- Written Sep 16, 2012 9:40am
Timaree & Jodi,
I am following along with your updates and I am so sorry that you have to be enduring this very difficult time. I am moved by your continued strength, even just the strength it must take to get through each day. It makes me think of this quote:
There is in every true woman’s heart a spark of heavenly fire, which lies dormant in the broad daylight of prosperity; but which kindles up, and beams and blazes in the dark hour of adversity. ~Washington Irving,The Sketch Book, 1820
Of course we know that even those with incredible stamina need a break now and then and we certainly hope that you are finding moments to rest a little. We think of you both, and Caemon, often and are sending warm fuzzies and healing energy your way. I know this is so scary and Im sure you all just want it to be behind you, and it will be, keep up that tenacity!
When it is dark enough, you can see the stars. ~Ralph Waldo Emerson
Love, Bill, Shannon, Jared and Tyler Heim
Shannon Heim
- Written Sep 12, 2012 7:40am
Holding Hope for your beautiful family. Holding you in my heart and sending love and light. Love, Jeanne
Jeanne Kirke
- Written Sep 12, 2012 7:14am
praying for your Caemon and especially for you parents… praying for the hope to remain. God bless
Sandi Kellman
sandi kellman
- Written Sep 12, 2012 3:38am
Hi there, Caemon!
Wishing you a wonderful Wednesday, mister! All the best vibes we can send are coming your way!
Alison Schoenfeld
- Written Sep 11, 2012 4:46pm
To anyone who has even a thimble full of extra positive healing energy, please send it to Caemon and his moms. Back in the hospital, Timaree needs strength to get through the caretaking until Jodi gets well from her cold. Sweet Caemon needs to have the strength to get beyond this and be the vibrant little boy he wants to be.
Janet Streight
- Written Sep 10, 2012 3:07pm
All the power of love focused on the MAGIC child. OM MANI PADME HUM!!!!
Patrick Streight
- Written Sep 5, 2012 5:41pm
Happy Birthday, Caemon..
Paula Wolfert
- Written Sep 5, 2012 5:10am
Happy Birthday little man. May you be well and healthy by your next one. Congatulations to your mommies on making it with flying colors through some though times. The best is yet to come.
With love and best wishes,
Lynn
Lynn Heilman
- Written Sep 4, 2012 6:46pm
What a wonderful day Sunday was! Celebrating birthdays of a sweet 3 yr old & his amazing mommy. The gleam in Caemon’s eyes, his quick wit, that engaging smile, all part of our memoable family experience. We are so, so blessed.
Janet Streight
- Written Sep 1, 2012 7:09am
Great news! Hope all goes well.
Lynn Heilman
- Written Aug 31, 2012 5:55am
I had a dream about you guys. I dreampt that Caemon was home and well and you and Jodi needed a grownups only break. I was to be the babysitter and you were showing me what I needed to do and where everything was. Great dream, really.
Love to all,
Lynn
Lynn Heilman
- Written Aug 30, 2012 10:44pm
Was sad to see no guestbook signing so I’m adding my name. I’m doing a simple website for a class on html5 / css3, my topic is bone marrow donation. Hope your trip home is peaceful.
Kim Wood
- Written Aug 30, 2012 9:50am
so sorry to read all that you two and Caemon are going through. You have been in my thoughts since the day we found out. Sending lots of love and hugs from Indiana.
Ayslinn
(lezbemoms)Ayslinn Grantham
- Written Aug 30, 2012 8:41am
Sending you all so much love and healing thoughts and prayers. I can’t stop thinking about you all.
Jody
Jody Kelley-Cohen
- Written Aug 29, 2012 1:09pm
We are friends of Anna and Louisa in LA and Caemon’s story touched us deeply – we are the lucky moms of three boys – all the best to your family and a speedy recovery to beautiful Caemon!
Melinda and Grady
Melinda Goddard
- Written Aug 28, 2012 5:02am
Caemon’s smiles are so uplifting! Sending loads of hugs and kisses and love and strength from Scotland. I miss all of you so very much, and I think of you every day. Love you! xxxooo
kathryn dyer
- Written Aug 27, 2012 8:29pm
So glad to hear that Caemon will be going home soon. I’m sure that will lift all of your spirits. Sending all good wishes and hugs.
Monti Lawrence
- Written Aug 27, 2012 7:46pm
Caemon, you’re a champ! Get better so we can throw water balloons at the windmill in your backyard! See you soon. Love, Adria.
Adria Gerard
- Written Aug 27, 2012 7:28pm
All three of you are constantly in my thoughts. I am so happy to hear that C is getting his spunk back…take it one day at a time this is the ultimate lesson in taking it one day at a time. I wish I was closer to bring you some food and well wishes. Much love.
Tracey Weiss
Sent from CaringBridge Android app
- Written Aug 27, 2012 7:03pm
So happy to hear that 3 year old mischief is coming back. You guys are always near to my heart right now. The pics are gorgeous.
Cindy Cothran
- Written Aug 27, 2012 5:47pm
Hi Timaree, Jodi, and Caemon, Julie, Ellie and I send all of our love and healing energy from Michigan. We’ve been sharing the need for bone marrow donors with friends and are hoping for a match for C very, very soon. Love you guys! xoxo
Betsy S
- Written Aug 27, 2012 5:40pm
Thinking of you guys! sending positive thoughts and prayers! xoxox
Yolanda Contreras
- Written Aug 27, 2012 5:39pm
Good news! Thanks for the update.
Lynn Heilman
- Written Aug 27, 2012 5:14pm
Timaree and Jodi,
You are at a very caring hospital.I’m glad he’s showing some spunk today. Pete and I will keep Caemon in our thoughts. I’m going to contact an organization I know called Team KC. Their sole mission is to support parents of children with cancer.Along with the prayers people are sending, I suggest they send something usable right now. I’ve sent gas, grocery or Startbucks gift cards to families in situations similar to yours.Much loveSue Williams
- Written Aug 27, 2012 1:29pm
The three of you are constantly in my thoughts. I just wish there were more that I could do. Hugs and love from Kansas.
Jen Laughlin
- Written Aug 26, 2012 8:53pm
Timaree, Your update was good to read. I am sorry that Buddy and I are too old to register for the bone marrow part of all this.
However, we will try to help on other fronts. Sending you love and courage, today. Sheryl
Sheryl Hott
- Written Aug 26, 2012 8:46pm
Caemon is beautiful, smart, sweet, compassionate, and magical. He will make it through this! You all are so amazing and strong individually – when your all together your unstoppable! Stay centered and find continued strength within, you can do this. This Leukemia messed with the wrong boy! I am praying for you and sending lots of love and light always, Love Amber
amber calabrese
- Written Aug 26, 2012 6:34pm
Hi Caemon, Timaree and Jodi,
We are all thinking of you here. Hope your days stay sunny and a speedy recovery.Phil and FamilyPhil Spates
- Written Aug 26, 2012 6:27pm
I wish I was closer. Sending love and light to you all. You will ALL move through this TOGETHER, with Ease and Grace, and that sweet boy will be turning 13 years old before you know it. So be it. Love, Jeanne
Jeanne Kirke
- Written Aug 26, 2012 4:14pm
Love you all so much 🙂 we’re gonna kick this thaaaangz ass!! Grrrrrr!
Kim Sweeney
- Written Aug 26, 2012 4:11pm
Timaree, you and Caemon and Jodi are in my thoughts all day and night. I hope his match is found immediately. Sending love.
Natka Bianchini
- Written Aug 26, 2012 1:55pm
Wish we were closer and could offer more help. Looks like you have a good community of support; I’m glad for that.
Hugs to all three of you. Do let us know if there’s anything we can do.
Anna Villeneuve
- Written Aug 26, 2012 12:46pm
So much love to you, all three. Lit a candle for you at UU today. Would’ve lit dozens but sensed that wasn’t the routine. Nils and I are here to help… one or both of us are often home and just bumming around with the babies, waiting to be useful.
Liz Erickson
- Written Aug 26, 2012 12:30pm
Timaree, I am thinking of you and praying, and praying again.
Cindy Gommel
- Written Aug 26, 2012 12:27pm
Hi guys, just dropping by to check on the latest news. It looks like Caemon is adjusting to things and is in good spirits. This I know makes you feel better too. I feel so bad that I can’t register for bone marrow (old age ), but, I will find a way to help you all. Love and kisses to you all. Take care . I am thinking good thoughts for you all. Lots of love , Kathy
kathy spates
- Written Aug 24, 2012 9:11pm
You hold my heart, sweet grand boy. I love you more than all the appliances and trains in the universe… Grandma
Janet Streight
- Written Aug 24, 2012 7:21pm
Sending Love and Light to you all.
Jeanne Kirke
- Written Aug 24, 2012 3:42pm
Stay strong and let your family and friends help with whatever you need! I work with Golbou and my daughter is a cancer survivor. I am praying for Caemon!! Tamara Kallhoff
Tamara Kallhoff
- Written Aug 24, 2012 11:56am
My thoughts and prayers are with you all..i hope a bone marrow match is found for Caemon..much love from my family to yours.
Cindy-lou Bartlett
- Written Aug 24, 2012 10:49am
I’m thinking about all of you, and hoping that Caemon’s match is already on the Registry so that everything can proceed quickly.
Bree Davidson
- Written Aug 24, 2012 10:28am
Please know that you are in my thoughts, and I wish you love and strength to face the challenges ahead. If I can help in any way, please do not hesitate to call.
Love to you all,
SueSue M
- Written Aug 24, 2012 6:53am
Our thoughts and prayers go to poor little Caemon at the beginning of a hard journey back to health and to his poor mommies
who will be there for him every step of the way.
Lynn Heilman
i look at your son and see my son, same blond hair and blue eyes. my thoughts and prayers are with you and your family. ❤ the proctors (amanda, carly, phillip and gabriel)
Love your new haircut Caemon, you look great in your costume. Sending you good thoughts and hope you are able to eat, loved your Guacamole story that you and your mom made. . You are a Cancer Warrior. Liz Ustick,BloodSource
Sending prayers and strong healing vibes to Caemon and wishes for a good rest and stamina to Jodi and Timaree . . . I am thinking of you three daily!!
Cathy Kroll
Hi Jodi and Timaree,
I know you probably don’t remember us, but my family and I met the three of you a couple years back at Depot Park in Sonoma. We both had the same stroller and were enjoying the day with our wonderful baby boys. (Our son Kieran is now almost 3!) For some reason that sweet little meeting always stayed in our minds and we’ve often brought it up to each other “I wonder when we’re going to run into Caemon and his moms?” We even moved to Sonoma about a year and a half ago and have always hoped we’d see you around town! So, when I stumbled across a posting on facebook today about the Carnival for Caemon, I was so happy and surprised to have “found” him and so heartbroken to hear about this chapter in his story. Anyway, I just wanted you all to know that you are in our thoughts now as always, and that we are sending lots of love and healing energy your way. I look forward to the day that Caemon is ready to get back out to the park and play and that Kieran can meet him again! Wishing you all much light, love, and strength…
Sarah, Tad, Kieran (and baby Nico) Kistner
Oh wow, hi there! Yes, we do remember you, and interestingly enough, we have mentioned your family through the last couple of years too. It was such a sweet encounter we had. Unfortunately, we moved from Sonoma to Santa Rosa about a year and a half ago, which explains why you haven’t seen us around. Thanks so much for sending a message. I’ll contact you via email too.
What a joy to be with our sweet Caemon for a few hours. We love you soooo much. Grandma & Grandpa
Isn’t my daughter an amazing writer?
Jodi and Timaree,
Just checking in tonight to see how Caemon is doing and how you are holding up. I had a chance to read both blogs (Doula and Metamorphosis) and am so glad I took the time. What beautiful images you both create with your words. My heart aches for the mother whose son will not be healed and rejoices all the more that Caemon is holding steady.
Caemon’s candle is currently in a bowl decorated with silver and gold Christmas crackers and red holly berries and it moved around a bit during the Christmas celebrations at our house. No matter how many LED candles we have going, Caemon’s never seems to be turned off, even when it’s someone besides us turning out the lights. I know the mucositis can last a long time but I am praying it is healing as we speak and each day gets easier for Caemon, and for you.
My heart goes out to you and your family during this unimaginably difficult time. I was wondering if there is still an amazon wish list. I noticed the link on the page but it appears to be broken. I live in the east bay (walnut creek) if your family ever needs help with ANYTHING don’t hesitate to ask!
I am so sorry. I am so sorry.
You may not remember us. My daughter, Cara (21), has ALL, and Caemon and Cara were in the hospital at the same time. I have a vivid memory of Caemon running to the nurse’s station in his “Cars” slippers. What a horrible loss, but I imagine him running in heaven well and cancer free. I thought you might like this song by Celine Dion:
Fly- Celine Dion
Fly, fly little wing
Fly beyond imagining
The softest cloud, the whitest dove
Upon the wind of heaven’s love
Past the planets and the stars
Leave this lonely world of ours
Escape the sorrow and the pain
And fly again
Fly, fly precious one
Your endless journey has begun
Take your gentle happiness
Far too beautiful for this
Cross over to the other shore
There is peace forevermore
But hold this mem’ry bittersweet
Until we meet
Fly, fly do not fear
Don’t waste a breath, don’t shed a tear
Your heart is pure, your soul is free
Be on your way, don’t wait for me
Above the universe you’ll climb
On beyond the hands of time
The moon will rise, the sun will set
But I won’t forget
Fly, fly little wing
Fly where only angels sing
Fly away, the time is right
Go now, find the light
Our prayers are with you.
Hi Jodi and Timaree, thank you for continuing the blog. I think about you both everyday. As you travel and when you come back, I hope you find the people that feel what you feel and that you have time to be with them and get a chance to be the holders as well as the holdees. Be safe, be warm. My prayers are with you.
Jodi and Timaree, I am Karli’s mom. I have followed your experiences because you mean so much to Karli and Tiff. I actually mailed most of the tee shirts in multiple trips to post offices. Your writings are some of the most profound words I’ve ever read. Please continue giving voice to your emotions. I have shared Caemon’s story with countless friends and strangers, all who are deeply moved by it. I will continue reading and hope to meet you both on some future eastbound trip. I have prayed for ALL of you and will continue lifting you up for comfort and purpose and direction. I believe heaven is a better place because of the presence of souls like your incredible son. Much love…Jenny Fisher
I was given a link to this site by a friend who found out I was running a half-marathon and fundraising for the Leukemia and Lymphoma society. For the past month or so I have been looking through your posts and pictures and have been touched so deeply by your strength and fearlessness. I think of Caemon often on my runs.
It is hard to fully comprehend such a loss…it is heartening that you have continued this blog, and I know that your story will help others who are going through similar situations. I hope that you continue to find strength and comfort in each other and those around you.
You are in my thoughts with love,
Ariana
Prayers and hugs. I have grieved the loss of an infant. I cannot imagine losing a child who has lived with you so many years. I also suffered from AML, a different kind of leukemia, so I know how horrendous the treatment can be and what my mother went through during my illness. You are brave women for sharing your story. God bless you.
Your beautiful boy’s journey made me cry and your lovely writings also. I am so happy for your news. I wish you a wonderful new journey and look forward to your future postings.
A friend sent me your blog yesterday and I have read it every spare second since then. My wife and I lost our sweet Maddox 6 weeks and 5 days ago. He was only 7 months old, and passed away very suddenly and tragically but I feel a deep connection with your story. Thank you so much for sharing Caemon’s journey and your thoughts and feelings of mourning his life.
I saw this today (9/20/2016) and instantly thought of you and Caemon. http://www.thisiscolossal.com/2016/09/a-caiman-covered-in-butterflies-photographed-by-mark-cowan/?mc_cid=6464e68ae3&mc_eid=3765a56ed3&utm_content=buffer92d88&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
Thank you for your “the eternal what-if” post. Your beautiful writing and the honesty of your emotional struggle touched me. I can tell by the photos that Caemon was a wonderful child. I am so sorry that he passed. I have CLL but am doing fine with it. Stories like Caemon’s remind me how horrible leukemia really is. Godspeed to you both.
Thank you so much for your comment, Jim. Wishing you all the best in your own journey with CLL.