Allow us introduce you to our son, Caemon. He was a wildly precocious, very sweet, creative, curious, funny little boy who was wise beyond his years. He was diagnosed with leukemia on August 21, 2012, and we later learned he had, in fact, a very rare form of the disease called juvenile myelomonocytic leukemia (JMML). Children under the age of five have literally one in a million chance of having JMML. Just over 1% of kids with any type of leukemia have JMML. It’s that rare. Caemon’s JMML resulted from a PTPN11 mutation, something unrelated to any other ailments. In fact, he was not born with this mutation. He simply had terrible luck.
Caemon underwent three rounds of intensive chemotherapy in a major children’s hospital in California’s Bay Area and eventually had a bone marrow transplant using the cells of a very generous unrelated donor. He fought so very hard; his resilience and bravery were an inspiration to all who knew him, but especially us, his parents.
In a horrible turn of events, we learned in late January that Caemon’s leukemia had relapsed, despite his transplant only one month prior. Just ten days later, our precious Caemon lost his battle with leukemia. He was three years and five months old. We miss him with every breath we take.
We, the writers, are Timaree and Jodi, Caemon’s moms. We have told our son’s story since his diagnosis, and we will continue to write as we live with our grief and carry on Caemon’s legacy of love.
Thank you for reading.