First, allow me to introduce you to my son, for he is the reason this blog exists. Caemon was a wildly precocious, very sweet, creative, curious, funny little boy who was oh so wise. He was diagnosed with leukemia on August 20, 2012, and we later learned he had, in fact, a very rare form of the disease called juvenile myelomonocytic leukemia (JMML). Children under the age of five have literally one in a million chance of having JMML. Just over 1% of kids with any type of leukemia have JMML. It’s that rare. Caemon’s JMML resulted from a PTPN11 mutation, something unrelated to any other ailments. In fact, he was not born with this mutation. He simply had terrible luck.
Caemon underwent three rounds of intensive chemotherapy in a major children’s hospital in California’s Bay Area and eventually had a bone marrow transplant using the cells of a very generous unrelated–and anonymous–donor. Caemon’s resilience and bravery in the face of so many unknowns, so many scary situations, were nothing short of inspiring. He was well-known for befriending his fears, for leading with so much love. In his own way, he changed the world.
In a horrible turn of events, we learned in late January of 2013 that Caemon’s leukemia had relapsed, despite his transplant only one month prior. Just ten days later, leukemia took our precious Caemon. He was three years and five months old. He is missed by everyone who knew him, but especially his parents.
This blog developed out of a need to share Caemon’s story through his treatment, but it soon became a space of working through trauma–and later grief. The writers here are Timaree and Jodi, Caemon’s parents. Timaree has been the primary writer for years, but you will see Jodi’s beautiful contributions noted as well.
Thank you for reading this sacred journey through the love and loss of the brightest light of a boy you could ever imagine.
May you always lead with love.
8 thoughts on “About Us”
Timaree and Jodi, I have read through your blog and will continue to. My thoughts are with you. ~cassandra
Timaree and Jodi, I am so sorry that this is happening to you guys. I know that there is no amount of apologies or anything else that can change what is happening, but I truly do hope and pray that Caemon stays as strong as he looks in these beautiful pictures. The contentment on his face in the guacamole photos are priceless. I will hold you all in the light each and everyday, and continue reading. If you need anything at all please text, call or email me. I have a lot of free time these days, so if you need anything, at all, even if Caemon needs blood, I am up for donating…I am A+. Seriously, anything I can do, let me know, and I will do what I can to help.
wow-your writing is beautiful and is inspiring me to continue to write. A friend of mine has just sent through a link to your site so I have only just found it. She thought it might spur me on to start my own blog which I have been muttering about starting for the longest time. Writing is helpful; it can be healing, although I am not sure I would use that word in relation to the death of my daughter. Maybe ‘sorting’ is a better one; expelling? Our daughter, Evie, died of osteosarcoma, three years ago when she had just turned 11. My partner is also a woman and we have no other children. We too have started a charity in her name- a remembrance but also an attempt to bring some good out of all the horror. So thank you for sharing-such beautiful words, such beautiful photos, such wondrous love. Alison xx
Your words touch my heart. You describe your sorrow and deep grief so sincerely and openly. it’s refreshing (although sad at times) to read your posts.
Your blog and story is amazing. I love what you are doing. You truly bring light to a dark world. For this, I have nominated you for the Lighthouse Award: http://booksandbark.wordpress.com/2014/05/26/lighthouse-award/
fly high little one, and if you meet my son, tell him i love and miss him. my love and prayers to your mommas.
Hi Jodi and Timaree. I’ve been a long time reader. I have something I wanted to write to you that probably is better in more privat format. Would you mind emailing me? Thank you. Lea
I am so sorry about your loss. I know very well how hard it is to loose a child. Mine lived for 15 hours after birth due to my pre-eclampsia and HELLP syndrome. I started blog because of him. Thank you for sharing your story! I will be following you! You are very inspirational!