About Us

CaemonCroc1 Allow us introduce you to our son, Caemon. He was a wildly precocious, very sweet, creative, curious, funny little boy who was wise beyond his years. He was diagnosed with leukemia on August 21, 2012, and we later learned he had, in fact, a very rare form of the disease called juvenile myelomonocytic leukemia (JMML). Children under the age of five have literally one in a million chance of having JMML. Just over 1% of kids with any type of leukemia have JMML. It’s that rare. Caemon’s JMML resulted from a PTPN11 mutation, something unrelated to any other ailments. In fact, he was not born with this mutation. He simply had terrible luck.

Caemon underwent three rounds of intensive chemotherapy in a major children’s hospital in California’s Bay Area and eventually had a bone marroNurse Caemon in his scrubsw transplant using the cells of a very generous unrelated donor. He fought so very hard; his resilience and bravery were an inspiration to all who knew him, but especially us, his parents.

In a horrible turn of events, we learned in late January that Caemon’s leukemia had relapsed, despite his transplant only one month prior. Just ten days later, our precious Caemon lost his battle with leukemia. He was three years and five months old. We miss him with every breath we take.

We, the writers, are Timaree and Jodi, Caemon’s moms. We have told our son’s story since his diagnosis, and we will continue to write as we live with our grief and carry on Caemon’s legacy of love.

Thank you for reading.

Image Courtesy of In Her Image Photography.

Image Courtesy of In Her Image Photography.

 

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8 thoughts on “About Us

  1. Amy Yamauchi

    Timaree and Jodi, I am so sorry that this is happening to you guys. I know that there is no amount of apologies or anything else that can change what is happening, but I truly do hope and pray that Caemon stays as strong as he looks in these beautiful pictures. The contentment on his face in the guacamole photos are priceless. I will hold you all in the light each and everyday, and continue reading. If you need anything at all please text, call or email me. I have a lot of free time these days, so if you need anything, at all, even if Caemon needs blood, I am up for donating…I am A+. Seriously, anything I can do, let me know, and I will do what I can to help.
    Amy

    Reply
  2. Alison Elgar

    wow-your writing is beautiful and is inspiring me to continue to write. A friend of mine has just sent through a link to your site so I have only just found it. She thought it might spur me on to start my own blog which I have been muttering about starting for the longest time. Writing is helpful; it can be healing, although I am not sure I would use that word in relation to the death of my daughter. Maybe ‘sorting’ is a better one; expelling? Our daughter, Evie, died of osteosarcoma, three years ago when she had just turned 11. My partner is also a woman and we have no other children. We too have started a charity in her name- a remembrance but also an attempt to bring some good out of all the horror. So thank you for sharing-such beautiful words, such beautiful photos, such wondrous love. Alison xx

    Reply
  3. Dina

    Your words touch my heart. You describe your sorrow and deep grief so sincerely and openly. it’s refreshing (although sad at times) to read your posts.

    Reply
  4. Lea

    Hi Jodi and Timaree. I’ve been a long time reader. I have something I wanted to write to you that probably is better in more privat format. Would you mind emailing me? Thank you. Lea

    Reply
  5. jasmineshei

    I am so sorry about your loss. I know very well how hard it is to loose a child. Mine lived for 15 hours after birth due to my pre-eclampsia and HELLP syndrome. I started blog because of him. Thank you for sharing your story! I will be following you! You are very inspirational!

    Reply

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