day +14: slowly, slowly

Today is two weeks past transplant. Caemon received a drug called GCSF (granulocyte colony-stimulating factor) that is meant to stimulate his new marrow to create neutrophils. This is standard protocol at this point in the transplant process, and it is meant to help the new marrow do its work. We look forward to seeing what happens.

I can’t tell you whether or not we’re turning a corner right now because I won’t make predictions at this point; however, what I can say is that Caemon is talking again. While he is sleeping much of the day, he has managed to do a bit of playing and has enjoyed telling us a few things here and there. He is swallowing, which means his pain is under control for now, and perhaps his mucositis is improving.

In addition, we have had a couple of days in a row of positive trends for his liver function. His bilirubin levels are lower, his weight is lower, and his abdominal girth is smaller. These are all factors showing an improvement in his liver function, and while things could still turn in any direction, we are pleased with this trend for now.

As I said, I hesitate to make any predictions, but it does feel like we’re getting our boy back a moment at a time. Last night, he woke me at 4:00 a.m. suggesting it would be a great idea to watch the Berenstain Bears. I agreed. He chatted with me, snuggled with me, and was clearly feeling pretty well. He even considered having some milk–his own suggestion–although on further consideration, he changed his mind. Another day. At least he’s thinking about it.

It’s not much, but in all honesty, today feels good. We had some glimpses of our boy for the first time in awhile, and we’re ready as soon as he is to see more.

15 thoughts on “day +14: slowly, slowly

  1. Hold on, little man! You are fighting so well and so hard! Keep it up and know that you are never alone!

  2. Keep climbing that mountain! We send our love to all of you everyday! And by the way The Bernstein Bears rock, good choice Caemon:)

  3. These are very positive steps and I will continue to pray that Caemon improves in leaps and bounds and will be grateful for these small steps. Keep coming back little man, keep coming back. We’ll keep the light on for you and I will carry your special rock in my pocket until I can give it to you in person. Bless you all.

  4. Yea! I was so lucky to get to spend some time with you all on this special day, when Caemon (Croc) started peeking out from his cocoon just a bit. It’s happening, I know it is.

  5. You’re on the windblown crust now where the traveling is easier. Keep your ice-axe at the ready, but breathe easy and step lively, things are easing up!
    Good to hear that health is returning, and with it, interest and liveliness.

  6. Go little Crocodile!!!!! I know you can get through this time and come out on the other side healthy and well! You have so many people behind you and two of the best moms! Sending light to help you along your journey!

  7. With all you have endured this past time it sure is nice to see Caemon is showing signs of being himself. Powetful things positive thoughts, prayers and of course light are to this young boy and his family.

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