Today is two weeks past transplant. Caemon received a drug called GCSF (granulocyte colony-stimulating factor) that is meant to stimulate his new marrow to create neutrophils. This is standard protocol at this point in the transplant process, and it is meant to help the new marrow do its work. We look forward to seeing what happens.
I can’t tell you whether or not we’re turning a corner right now because I won’t make predictions at this point; however, what I can say is that Caemon is talking again. While he is sleeping much of the day, he has managed to do a bit of playing and has enjoyed telling us a few things here and there. He is swallowing, which means his pain is under control for now, and perhaps his mucositis is improving.
In addition, we have had a couple of days in a row of positive trends for his liver function. His bilirubin levels are lower, his weight is lower, and his abdominal girth is smaller. These are all factors showing an improvement in his liver function, and while things could still turn in any direction, we are pleased with this trend for now.
As I said, I hesitate to make any predictions, but it does feel like we’re getting our boy back a moment at a time. Last night, he woke me at 4:00 a.m. suggesting it would be a great idea to watch the Berenstain Bears. I agreed. He chatted with me, snuggled with me, and was clearly feeling pretty well. He even considered having some milk–his own suggestion–although on further consideration, he changed his mind. Another day. At least he’s thinking about it.
It’s not much, but in all honesty, today feels good. We had some glimpses of our boy for the first time in awhile, and we’re ready as soon as he is to see more.